Bladder cancer resources and support organisations
There are many organisations and support groups to help you cope with bladder cancer and its treatment.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to prevention and treatment.
We are committed to producing high quality information for people affected by cancer. As well as looking at the information on this website you can call our nurse freephone helpline on 0808 800 4040. They are available from Monday to Friday, 9am to 5pm. Or you can send them a question online.
This charity is run by bladder cancer survivors and their families. You can join a support network and a confidential online forum. You can find information about how treatments might affect you.
This UK based charity gives information and support to people affected by bladder cancer. They can also give you details of support groups in your local area.
This is a self help organisation that runs a network of groups throughout the country. They can arrange for someone who has had a urostomy to visit you before and after your surgery.
They also provide booklets about what is a urostomy, guidance on diet and exercise, travel and sex life after a urostomy.
The Bladder and Bowel Community supports people living with bladder and bowel disorders and has a telephone helpline. The service is confidential. They can also give you information about stoma products.
They have a 'Just Can't Wait' card which allows holders access to toilets in shops and when you are out. It's free to order on the website.
Forward House
17 High Street
Henley-in-Arden
B95 5AA
A patient led group that promotes understanding about pelvic radiation disease. Pelvic radiation disease is a late effect of radiotherapy treatment. They support patients and campaign for more research and better treatment for this condition.
Macmillan Cancer Support is a charity that gives practical and medical support to people with cancer in the UK. Its helpline offers support with clinical, emotional, general and welfare benefits needs. They also publish booklets about cancer and treatments. Information is available in other languages.
Freephone: 0808 808 00 00 (7 days a week, 8am to 8pm)
Contact email form
Disability Rights UK provides an information and advice service and campaigns for disabled people's rights.
They also provide a Just Can't Wait card and radar keys that give access to toilets throughout the UK for people who might need to use a toilet in a hurry. They also have several helplines providing information and advice.
The Department for Work and Pensions have information on the Industrial Injuries Disablement Benefit for people that have been exposed to chemicals that could cause bladder cancer.
Relate offers private and confidential counselling, and psychosexual therapy to help with relationship problems. They provide counselling over the phone, through a webcam or face to face at a Relate centre. Clients are asked to contribute towards the cost of their counselling sessions according to their income.
An independent network that provides free advice about money, legal issues, housing health and social welfare issues. Often provides advice in English and other languages.
Coloplast supply stoma, continence, urology and wound care products. They also have booklets about using an internal urine pouch (continent urinary diversion) and essential things you should know before and after a urostomy.
Delivers supplies of prescription colostomy and ileostomy equipment. Also gives information on all areas of stoma care. Has a clinical support helpline for wound care.
Dansac is a company that works with people with stomas to develop stoma care products and services. They aim to make life better for people living with a stoma and those who care for them.
StoCare provides advice, information and support for people living with stomas. They also have products that may be helpful such as spray or wipes to protect your skin. Or if you need help in removing your stoma products. You may be able to get these on prescription. Or you may choose to buy them.
You can contact them through their website or by post or telephone.
Unit A, Newlands House
60 Chain House Lane
Whitestake
PR4 4LG
UK
Handcrafted covers made to fit every size of ostomy bag or pouch following surgery resulting in a stoma such as an ileostomy, colostomy or urostomy. The covers come in a wide range of fabrics and are specifically tailored to fit each individual stoma bag.
Telephone: 01205 723327
Email: lindabutler59@hotmail.com
Find local cancer information and support near you
There are organisations and support services in your local area that you can access. You can ask your specialist nurse or doctor for more information about cancer services near you.
England
The NHS website has a service that tells you about local information and support in England.
For support and information, you can call the Cancer Research UK information nurses. They can give advice about who can help you and what kind of support is available. Freephone: 0808 800 4040 - Monday to Friday, 9am to 5pm.
